Wednesday, April 13, 2016

Recovery

Tomorrow will be a week since Mia's surgery.  It's been a long week for our Mia.  She stayed home from school last Friday and Monday.  Tuesday she went to school,  but had a rough day and was in tears from the pain by the time she got home. Today she woke up showered and got ready for school but was in a lot of pain and wasn't able to go to school. This afternoon her pain got more intense and she asked me to look on her mouth and see how it looked.  I noticed a few spots where it was bleeding.  She ended up taking a little pain medication but it did not relieve the pain. It has continued to bleed through this evening.  Mia was hungry and tried to have something to eat,  but ended up curled up on the couch crying.  Our poor baby I so wish she didn't have to go through all of this. After a good cry on the couch and some advil our Mia was able to have a few bites of ice cream.  If you know Mia you know ice cream makes everything better!  We are hoping she can get done rest tonight and that it looks betterin the morning but if not we will be calling the doctor

Thursday, April 7, 2016

Home sweet Home

We are all happy to be home! It's been a long day for all of us. We are hoping our night goes smoothly and will update again in the morning.

Recovery

Mia is in recovery.

In surgery

Mia is in surgery, 

Headed to the hospital

We left home at around 6:15 this morning,  dropped off Noah and Addy with momo & papa.
Mia has had another rough week,  she hit her head (right side of her forehead) on Monday at school.  This is worrisome because any trama to her malformation can cause it to grow.  She has a couple small superficial cuts,  its red, swollen and painful.  Tuesday evening it hurt her quite a bit, she actually fell asleep with an ice pack on her head.  Wednesday morning she woke up crying with pain. Mia insisted she was still going to go to school,  so she held ice on her head until the bus came and made it the whole day at school.
Her mouth has still been bothering her quite a bit too,  we are hoping one she heels from today's surgery she can get some temporary relief at least in her mouth. 
The hardest thing right now is that Mia is starting to go through puberty which can cause these Venous/ lynphatic malformations to grow at a rapid rate. Needless to say the last year of Mia being in pain is just the beginning of a long road.
We will update again once Mia goes into surgery.