Post Surgery - day 6

It has been 6 days since Mia's surgery and she seems to be doing very well. She has been playing with her christmas gifts, coloring & watching movies with her brother and sister. Mia did have alittle fall on Christmas, she was running around the basement at her aunt & uncles place when she slipped and as luck would have it, landed on her head. Mia was in quite a shock as was I. I quickly picked her up and got her upstairs. We put some ice on it but that didn't work out as well as we hoped so a 15 minute drive later and Mia was taking some of her pain medicine. It really takes alot for Mia to ask for pain medicine so we knew that it was hurting pretty good. The next morning Mia told us that she "didn't sleep so good, my head hurt all nite". She didn't wake us up at all even thou she was in so much pain. We told her that if was ever in any pain, wake us up so that we can help her feel better. We took the pain medicine with us for our trip to my dad's, thankfully, she started feeling better and hasn't needed it since.

Mia also received a beautiful bouquet of flowers from her teacher yesterday. That was so sweet, thank you very much. Mia loves to look at them and smell them, she even has a favorite flower because "its so big and sparkly!". Mia carried them from room to room to find the best place to set them, which ended up being the dinning room table.

She's Home

Mia is finally home from the hospital. It was such a relief and now I finally get to hold her. She seems to be doing great. Mia collected quite the number of gifts and items from her stay. She also had a few gifts to open from some loving people, thank you very much. It is so nice to have so a wonderful family and friends whom all care so much for our princess Mia. We are all truly blessed!

Coming Home

Mia is finally coming home, well actually almost home. She had a rough nite at the hospital not being able to keep anything down. That all changed this morning when she ate2 pancakes and jello around 2am, then around 8:30 she decided she needed some more pancakes with hash browns, bacon & chocolate milk. Talk about a hungry hungry Mia, she hasn't ate anything for about 30 hours. I heard that for the ride home, a strawberry shake with whip cream & a cherry is the drink of choice. I can't wait to hold her in my arms when they get home.

Recovering

Its been a long day for my little princess. Mia is out of surgery and in her room now. The doctors said they were able to get the areas they wanted to. Her forehead was the main concern with the injections. The doctor had to get to the outer layer of her skull to help minimize any swelling or pressure the malformation would cause.Thankfully all of this was done with tinny needles, no scalpel. I was able to talk to her again, it was sooo good to hear her voice.

Mia is doing her best to get some rest. Unfortunately every time she eats or drinks, she starts throwing up. Hopefully that will not last to long. I remember her last surgery and it took a long time for Mia to be able to keep anything down. I'm still not sure if they will be coming home tonite or not. I'm hoping they do because I miss them very much.

1st part done

The fist doctor is all done, he lasered the roof of her mouth. He said that he didn't over do it, as there were some areas that he didn't feel were ready. Maybe in a few months Mia might need to have this done. But for now, the second doctor is doing his part with the injections.

In surgery...

Mia called me a little bit ago to tell me she was going into surgery. She started to cry a little because she is scared. I told her how proud I was of her being such a strong girl and how much I love her. She said "Love you daddy" in her little cry voice. Poor little princess. Now we just have to sit and wait, only 3~4 hours!!

Testing completed

It has been a trying morning. The testing has been completed but not with a little rough spot. First things first, hospital gown. Mia's x-ray test went fine however when it came time for the pulmonary testing, she had to breathe into a tube. Well, she has a sore on the side of her mouth then when she has to open her mouth up big, it split open and hurts. That wasn't the easiest test for her today. Right now they are waiting for the doctors to come get her for surgery. Mia is passing the time by coloring in her Hello Kitty coloring book and riding the giraffe. She packed up somethings this morning to help her. Such a little trooper. I'll post next once they have taken her for surgery.

The start to a long day...

Mia, Brandy & Karen are on their were to the hospital. It is going to be a long day for them.

Mia will be having a laser treatment done to the roof of her mouth and some injections into her forehead. Because of the fluid the doctors will be injecting into her forehead (Bleomycin), Mia needs to have several tests prior to surgery. Here is a schedule of there activities today;

10:00 am - Chest X-ray
10:30 am - Pulmonary Function testing
11:00 am - Blood work
1:00 pm - Surgery

We have been told that it should last between 3-4 hours and the hospital will most likely keep her overnight. I will update this blog as soon as I get work of either results or how she is doing. Unfortunately I am home sick with a high fever, aches and chills. I feel so helpless that I cannot be there for my Mia when she needs me the most. Love you princess!!

Surgery

It is that time again, Mia will be having her 4th surgery.

Her surgery is scheduled for Thursday 12/23 @ 1pm. It will be at Childrens Hospital in Milwaukee.

More details to follow....

Catch-up

As I'm sure you can tell from the time between posts, its been to long. So many things have been things have been filling the time, where to begin...

Summertime flew by so fast. We did find a nice way to spend some quality family time together, going to Lake Geneva. Mia definitely enjoyed her time at the beach, from swimming and jumping off the pier to building sand castles. We are looking forward to going back next year. Mia also learned to swim this year at her Aunt Tammy's pool. Whenever we would go there, she would turn into a fish!! We cannot believe how long she can hold her breath. Mia would jump off the diving board and either swim to the ladder or to the shallow end, which is about 15' away.

Mia is still taking dance lessons at Steps To Grace Dance Academy. She is learning tap & ballet this semester and will be moving up to the next level this spring. I can't get over watching her do the different moves or even just making up some little routine around the house. Dance has become such a wonderful experience for Mia as well as for Brandy & I to watch her become this amazing ballerina.

Probably the biggest thing for Mia this year was starting kindergarten. She love's it! Every week Mia is so excited to tell us about her new job that she gets to do for her class like handing out snack milk or her favorite, feeding Pumpkin, the class guinea pig. She has been doing very well in school and loves her teacher. She just finished up learning how to roller skate. Mia is off now for Christmas break which brings us up to speed....