Post surgery check-ups

Mia had her post surgery check-up which went very well. The Dr. who did the surgery sat with us for almost an hour to go over how Mia has been the past two months. He did an ultrasound on Mia's forehead to see if the injections are working... they are! The areas were they did injections are not showing any blood flowing in the tissue. That's a good sign that nothing is growing in those areas. Of course we couldn't see the area between the inner & outer skull, that will require an MRI. At least outside the skull is showing promise. With this news, we are looking to schedule another injection soon and this time he will focus on Mia's eye orbit. This will hopefully take pressure off her eye and start improving Mia's vision.

Mia also had another vision check up too which went pretty well, for the most part. The Dr. felt that her vision could start getting better in Mia's right eye. We did get a new prescription for glasses and her left eye will just be plain glass, just need to work on the right eye.

Post Surgery - day 6

It has been 6 days since Mia's surgery and she seems to be doing very well. She has been playing with her christmas gifts, coloring & watching movies with her brother and sister. Mia did have alittle fall on Christmas, she was running around the basement at her aunt & uncles place when she slipped and as luck would have it, landed on her head. Mia was in quite a shock as was I. I quickly picked her up and got her upstairs. We put some ice on it but that didn't work out as well as we hoped so a 15 minute drive later and Mia was taking some of her pain medicine. It really takes alot for Mia to ask for pain medicine so we knew that it was hurting pretty good. The next morning Mia told us that she "didn't sleep so good, my head hurt all nite". She didn't wake us up at all even thou she was in so much pain. We told her that if was ever in any pain, wake us up so that we can help her feel better. We took the pain medicine with us for our trip to my dad's, thankfully, she started feeling better and hasn't needed it since.

Mia also received a beautiful bouquet of flowers from her teacher yesterday. That was so sweet, thank you very much. Mia loves to look at them and smell them, she even has a favorite flower because "its so big and sparkly!". Mia carried them from room to room to find the best place to set them, which ended up being the dinning room table.

She's Home

Mia is finally home from the hospital. It was such a relief and now I finally get to hold her. She seems to be doing great. Mia collected quite the number of gifts and items from her stay. She also had a few gifts to open from some loving people, thank you very much. It is so nice to have so a wonderful family and friends whom all care so much for our princess Mia. We are all truly blessed!

Coming Home

Mia is finally coming home, well actually almost home. She had a rough nite at the hospital not being able to keep anything down. That all changed this morning when she ate2 pancakes and jello around 2am, then around 8:30 she decided she needed some more pancakes with hash browns, bacon & chocolate milk. Talk about a hungry hungry Mia, she hasn't ate anything for about 30 hours. I heard that for the ride home, a strawberry shake with whip cream & a cherry is the drink of choice. I can't wait to hold her in my arms when they get home.

Recovering

Its been a long day for my little princess. Mia is out of surgery and in her room now. The doctors said they were able to get the areas they wanted to. Her forehead was the main concern with the injections. The doctor had to get to the outer layer of her skull to help minimize any swelling or pressure the malformation would cause.Thankfully all of this was done with tinny needles, no scalpel. I was able to talk to her again, it was sooo good to hear her voice.

Mia is doing her best to get some rest. Unfortunately every time she eats or drinks, she starts throwing up. Hopefully that will not last to long. I remember her last surgery and it took a long time for Mia to be able to keep anything down. I'm still not sure if they will be coming home tonite or not. I'm hoping they do because I miss them very much.

1st part done

The fist doctor is all done, he lasered the roof of her mouth. He said that he didn't over do it, as there were some areas that he didn't feel were ready. Maybe in a few months Mia might need to have this done. But for now, the second doctor is doing his part with the injections.

In surgery...

Mia called me a little bit ago to tell me she was going into surgery. She started to cry a little because she is scared. I told her how proud I was of her being such a strong girl and how much I love her. She said "Love you daddy" in her little cry voice. Poor little princess. Now we just have to sit and wait, only 3~4 hours!!