Long weekend

It's been a long weekend. Starting with the ER trip Thursday night / Friday morning. They never did figure out what was causing Mia to get the high fever or abdominal pain. All the Dr's guessed it must be something viral and there is nothing they can do or give her. Best thing we can do for Mia is keep an eye on her temperature, which got up over 102° of and on Friday into Saturday. Switching between Tylenol and advil was the only thing to help give her some relief.
Then came Sunday, finally. .. a good day. Mia woke up after 7 and had her happy smile back. Such a relief after the close monitoring and wondering what was going to happen next. It was a relaxing day of Lego's, rumikub and Yahtzee. Hopefully Mia will continue feeling better tonight, get some good sleep and be ready for school Monday.

Home

We just got home. .. they did a full workup, x-ray, CT scan, blood work. .. they didn't find anything pointing to what caused the high fever. Xray of Mia's chest showed a possible slight start of phenomena but ruled it out. No real answer on what happened but good news that her white blood cell count was normal and her body was trying to fight off whatever it was.  They did give her some antibiotics before we left so hopefully that and some sleep will help Mia.

Sweet dreams princess, we love you.

CT scan

Mia just came back from he CT scan. Really hoping they see something. So frustrating when our little girl is in pain but there is nothing they can do, maybe this time will be different. At least her fever the has come down but it's been up and down all night. The Dr said he would be in shortly with some results. ..

ER visit

I wish I had better news to update everyone with. Today during gym, they were playing dodge ball and Mia got hit in the stomach. She went to the nurse and then called Brandy to pick her up. Once they got home she started to feel weak. Then Mia started to get a fever at which point we call her chemo medicine Dr.

So here we are again. They are checking her over and getting her prepped for a CT scan in a couple hours. For now we wait.

Follow up & back to school

Yesterday Mia went to her follow up from her appendix surgery. The doctor said that everything looks good and seems to be healing well. We did ask the question about weather or not the chemo medication had caused the appendix situation ?? The answer the doctor gave us was as we had suspected  ,,,there really is no way to tell if the med was or wasnt the reason this happened with her appendix .
The oncologist also called and said that we could re start the chemo meds . We are so torn on this ,,it's such a difficult decision to make. Do we give her the meds and risk another possible infection of some kind ?? Or do we not and give up our hope for finding something that could possibly help with her LM???  Rich and I have decided to have her continue taking the med (as long as there are no further complications ) for the next 2 months . At that time March 11 Mia is scheduled for another MRI at UW and a followup with her oncologist to see if the med is doing anything to help ?
Mia did go to school today and had a pretty good day .
We are so very greatful that mia has came through this so well now all we can do is stay positive and give it to God !!!

Suprise

Mia just got a visit from her principal and one of her teachers Mr. Protz . It is truely amazing the thoughtfulness and care shown by all of the staff and students at the school.The principal had even called us to check on mia the day we came home from the hospital. On Wednesday the school nurse called to check on her , Mia & the nurse have become quite close this year as Mia has been going through this tough time. It is a blessing to know that she is there for Mia. They brought mia all of these wonderful treats and a card signed by her classmates and teachers. There really aren't words to express our graditude for everything. ...thank you and this support and knowing everyone cares for oir little Mia helps so much in keeping not only Mia but mom & dad stong as well . I did get a call from the Oncologist today and have to call her back and will update on that later today.  

Smoothie

Mia woke me up and 5am this morning with a little pain ,she took some meds and went back to sleep till around 8. She woke up feeling a little better and we just made some strawberry ,banana  & yougart smoothies of course mia had to add some whip cream to hers ...lol