Friday, May 20, 2016

Eye Apt. / MRI

     About three weeks ago Mia got off the bus after school with tears in her eyes.  She told me that all day she had been struggling to see, even with her glasses on. Mia had her last eye check up about 2 months earlier and at that time her vision had been stable for the last couole of years. We called the eye dr, but even with our concerns of urgency the soonest they were able to get Mia in was May 18th.
      During those long three weeks of waiting Mia's vision remained poor. Mia has also been experiencing quite a bit of pain alongside her changes in vision. She's had both bad days with stronger more frequent bouts of pain and those few days which we are incredibly thankful for when Mia would have little to no pain.
       Two days ago we finally got to see the eye dr, her eye exam confirmed that indeed Mia's vision had gotten worse. There was a not so expected finding at the eye dr as well, her left eye had gotten worse (in the past her left eye hasn't really been bad at all).
     The eye dr faxed a report of the eye exam to the VAC (vascular anomalies clinic) at UW Madison where Mia is seen.  Later that day we received a call from a nurse at the VAC that said the Neuro surgeon would like Mia to have another MRI STAT (as soon as possible).
      Which brings is to today.  Mia and I (Brandy) arrived at the hospital at 9 am. A nurse placed Mias IV around 9:30, the IV is for contrast during her MRI. Mia was a Champ as usual getting her IV put in,  she put her headphones on and listened to her music. Mia uses music to relax quite often,  she uses it to help her relax during times of pain and discomfort.  Mia stays awake for her MRI'S now, so she was a little nervous about that this morning,  wondering how long it would take etc. 
Mia went into the MRI room at 10. The nurse said it will probably take 1 to 1 1/2 hours.
      We are all overly anxious to know what the MRI shows.  I'm hoping that we will get to hear something today,  but it will probably be next week before we hear the results. 
We will update more when we get any information.