1st part done

The fist doctor is all done, he lasered the roof of her mouth. He said that he didn't over do it, as there were some areas that he didn't feel were ready. Maybe in a few months Mia might need to have this done. But for now, the second doctor is doing his part with the injections.

In surgery...

Mia called me a little bit ago to tell me she was going into surgery. She started to cry a little because she is scared. I told her how proud I was of her being such a strong girl and how much I love her. She said "Love you daddy" in her little cry voice. Poor little princess. Now we just have to sit and wait, only 3~4 hours!!

Testing completed

It has been a trying morning. The testing has been completed but not with a little rough spot. First things first, hospital gown. Mia's x-ray test went fine however when it came time for the pulmonary testing, she had to breathe into a tube. Well, she has a sore on the side of her mouth then when she has to open her mouth up big, it split open and hurts. That wasn't the easiest test for her today. Right now they are waiting for the doctors to come get her for surgery. Mia is passing the time by coloring in her Hello Kitty coloring book and riding the giraffe. She packed up somethings this morning to help her. Such a little trooper. I'll post next once they have taken her for surgery.

The start to a long day...

Mia, Brandy & Karen are on their were to the hospital. It is going to be a long day for them.

Mia will be having a laser treatment done to the roof of her mouth and some injections into her forehead. Because of the fluid the doctors will be injecting into her forehead (Bleomycin), Mia needs to have several tests prior to surgery. Here is a schedule of there activities today;

10:00 am - Chest X-ray
10:30 am - Pulmonary Function testing
11:00 am - Blood work
1:00 pm - Surgery

We have been told that it should last between 3-4 hours and the hospital will most likely keep her overnight. I will update this blog as soon as I get work of either results or how she is doing. Unfortunately I am home sick with a high fever, aches and chills. I feel so helpless that I cannot be there for my Mia when she needs me the most. Love you princess!!

Surgery

It is that time again, Mia will be having her 4th surgery.

Her surgery is scheduled for Thursday 12/23 @ 1pm. It will be at Childrens Hospital in Milwaukee.

More details to follow....

Catch-up

As I'm sure you can tell from the time between posts, its been to long. So many things have been things have been filling the time, where to begin...

Summertime flew by so fast. We did find a nice way to spend some quality family time together, going to Lake Geneva. Mia definitely enjoyed her time at the beach, from swimming and jumping off the pier to building sand castles. We are looking forward to going back next year. Mia also learned to swim this year at her Aunt Tammy's pool. Whenever we would go there, she would turn into a fish!! We cannot believe how long she can hold her breath. Mia would jump off the diving board and either swim to the ladder or to the shallow end, which is about 15' away.

Mia is still taking dance lessons at Steps To Grace Dance Academy. She is learning tap & ballet this semester and will be moving up to the next level this spring. I can't get over watching her do the different moves or even just making up some little routine around the house. Dance has become such a wonderful experience for Mia as well as for Brandy & I to watch her become this amazing ballerina.

Probably the biggest thing for Mia this year was starting kindergarten. She love's it! Every week Mia is so excited to tell us about her new job that she gets to do for her class like handing out snack milk or her favorite, feeding Pumpkin, the class guinea pig. She has been doing very well in school and loves her teacher. She just finished up learning how to roller skate. Mia is off now for Christmas break which brings us up to speed....

Happy 5th Birthday!!

I can't believe that Mia has turned 5 today, she is getting so big. I told her this weekend that she was not having another birthday and that she would stay 4 forever. Mia said "No way Daddy, I'm turning 5!" A busy day for her today is in motion... a little party at Nola's, costume pickup at dance class then off to dinner at Beef-A-Roo. We thought that Mia would have wanted to go to Red Robin since it is her absolute favorite, but after dance practice she gets a shake from Beef-A-Roo and asks Brandy "Mommy can't we eat inside?" so tonite we dine inside. Mia has been soooo excited about her birthday this year, it's hard to put into words the level of excitement. This weekend she kept telling us "not tomorrow but the next tomorrow will be my 5 birthday." Then yesterday morning she had to wake everyone up to tell us that tomorrow morning is her birthday. Unfortunately I wasn't home this morning when she woke up but I could tell my the sound in her voice when she called me, she's excited!

Mia has been doing very well over the past couple of months. Now that her tonsils have been removed, she is no longer sawing logs when she sleeps and definitely seems to be sleeping much better. The scar revision on her top gum is no longer bothering her eating or brushing her teeth. So at this point there are no surgeries in the near future and Mia is enjoying life... at 5.

Love you princess!!