Recovery

Mia is in her room recovering. Swelling right now is pretty big and will probably get bigger before it starts getting smaller. Right now she is eating some applesauce and crackers. Hopefully she can keep eating and drinking then we'll be heading home tonight. 

Recovery

Mia is finally in recovery. The Dr talked to us and said everything went as planned. They did injections around her eyebrow and eyelid. At this point her eye is swollen shut but this is normal and should start getting smaller within the week.

Brandy just went back to be with her when she wakes up. Addy, Karen, Momo and I are waiting to see her when she is moved to her room.

Surgery. ..still

The familiar faces we see and our journey from pre-op to the operating room still in our memories from the last couple surgeries she has had, Mia was visibly nervous this time. Probably the most that we've ever seen, thankfully she didn't cry out she was scared this time.

Even still, her legs we shaking and I was doing all I could to keep her mind off of what was about to happen. Difficult task when you've got nurses and doctors standing around the bed along with all the monitors and health care gadgets.

Tough when your at her side and doing all you can but it still isn't taking away her nerves. Thankfully Mia is strong and this will become another part of her journey. 

Surgery

Mia is in surgery now. ..

Surgery #7 - Checked in

We are all checked in and just getting started with pre-op activities; weight, height, temp, blood pressure.

Surgery is scheduled to begin around  1230 and should last about 3-1/2 hours.

We love you Mia!

Eye troubles

For about the last month things have been challenging for Mia. It all started when she got hit on her forehead and eye with a football while playing with Noah and Addy . Part of our concern with her LM has always been her vision. On the white of her eyeball on her right eye, the LM is visible and looks red on the sides but not covering the cornea. Occasionally it would turn red if her eye . She has also been in quite a bit of pain off and on along with some head aches. This was very concerning to us because Mia normally has a high pain tolerance and rarely even complains of pain after a surgery.  Mia is also getting older so has a lot of questions and is scared.  It has been tough to have her look up to us with questions and have to answer her with "we don't know" . 

We were at Milwaukee children's last Monday all day and she had an ultrasound with the interventional radiologist . We also saw an eye specialist that afternoon. 

Tomorrow morning we are leaving at 430 to head to Milwaukee Children's Hospital for an MRI .it has been 3 years since her last MRI. The MRI will take about 2 hours and Mia is going to do it without sedation (she has had many MRIs but has always been sedated for them in the past).

Happy New Year 2015

Another year has come and gone. Time to say goodbye to 2014 and welcome 2015.

Love you Mia.