Follow up & back to school

Yesterday Mia went to her follow up from her appendix surgery. The doctor said that everything looks good and seems to be healing well. We did ask the question about weather or not the chemo medication had caused the appendix situation ?? The answer the doctor gave us was as we had suspected  ,,,there really is no way to tell if the med was or wasnt the reason this happened with her appendix .
The oncologist also called and said that we could re start the chemo meds . We are so torn on this ,,it's such a difficult decision to make. Do we give her the meds and risk another possible infection of some kind ?? Or do we not and give up our hope for finding something that could possibly help with her LM???  Rich and I have decided to have her continue taking the med (as long as there are no further complications ) for the next 2 months . At that time March 11 Mia is scheduled for another MRI at UW and a followup with her oncologist to see if the med is doing anything to help ?
Mia did go to school today and had a pretty good day .
We are so very greatful that mia has came through this so well now all we can do is stay positive and give it to God !!!

Suprise

Mia just got a visit from her principal and one of her teachers Mr. Protz . It is truely amazing the thoughtfulness and care shown by all of the staff and students at the school.The principal had even called us to check on mia the day we came home from the hospital. On Wednesday the school nurse called to check on her , Mia & the nurse have become quite close this year as Mia has been going through this tough time. It is a blessing to know that she is there for Mia. They brought mia all of these wonderful treats and a card signed by her classmates and teachers. There really aren't words to express our graditude for everything. ...thank you and this support and knowing everyone cares for oir little Mia helps so much in keeping not only Mia but mom & dad stong as well . I did get a call from the Oncologist today and have to call her back and will update on that later today.  

Smoothie

Mia woke me up and 5am this morning with a little pain ,she took some meds and went back to sleep till around 8. She woke up feeling a little better and we just made some strawberry ,banana  & yougart smoothies of course mia had to add some whip cream to hers ...lol

Recovery

Mia is still having some pain from her surgery and then last night and today she has complained of pain in her right eye (where she has the lymphatic malformation ) . She is doing a little better each day and everyone's love & support are the best medication she could get.  Mia got a very nice suprise visit from her best friend Gwen tonight , thanks again to Kristen Gwen's mom and  her sisters for coming too !! It was so sweet they brought mia a gift and some beautiful flowers too.
Thanks to everyone who has been checking in on Mia it means so much to her to know that everyone cares so much.  Her surgical follow up is scheduled for next Monday afternoon and then hopefully she will be back to school on Tuesday .
Addy update : surgery scheduled for next Friday January 15th at UW Family Children's Hospital.

Home ....

We have been home for a few hours now . The car ride and getting into the house were a little rough so she had some pain this afternoon. She had legos from auntie Tammy and MoMo Norton when she got home so that made her happy. She stared at the boxes for quite awhile , then after a dose of pain meds this afternoon her and mommy started to put one of them together. The oncologist called me this morning to check on mia and said we are going to stop her chemotherapy medication. Which is both a blessing and a curse . The chemo med was very scary but was also basically our only shot for a possible treatment for where her LM is growing in the bones of her skull. The surgeon in Ohio at Nationwide did say if the chemo med didn't work that he would attempt to inject the areas but he has only done it like 1 other time and it didn't really help anything .
On a side note we had to take Addison for her follow up this morning with her ENT from UW . We found out she does have some cysts growing back in her  ear again and she will be having surgery at UW sometime in January . For Those of you that didn't know Addy lost her hearing in her right ear last spring due to a cholestoma cyst they found that had grown so large it had almost reached her brain ,, so everything in her ear was removed . The surgeons hope is that once she removes the new cysts that she's going to attempt to rebuild Addison's ear so that she may regain some of her hearing.
We are all looking forward to sleeping at home tonight!!
Thanks everyone for all of your love and support !

GoFundMe account created

We would love it if you took a moment to check out Mia's GoFundMe campaign:

http://e.gofund.me/ourprincessmia

Your support would mean a lot to us. Thank you so much!

Coming home

She didn't sleep to good last night so she is a bit tired today. It's been a long weekend and Mia got the all clear to go home.

Hopefully once we get home, she will be more comfortable and will get some sleep.

Post-op

   Rough morning. ..Mia was having quite a bit of pain when she woke up this morning she had went too long through the night with no pain meds They were going to give her morphine through the IV to help get her pain under control  but the IV was bad and this was already her 2nd IV. They took the IV out and gave her a pain pill instead which seemed to help her. She's been up walking a couple times but said she didn't realize how much you use your stomach muscles . She got to have some vanilla ice cream which she loved.  Busha, Julie ,Ian, MoMo Svedin , Addison , Aunt Nikki, Bella,Mariah, Aunt Britt and Keegan all came to visit her which made Mia Happy. Once they left she started to have some pain again and laid down in bed ,she has been sleeping since then. ..and Daddy is asleep too !!   We were hoping to possibly go home tonight but I think it may be tomorrow before we get to go . Will update more later . Thanks to everyone for all of your prayers, love and support ..we are blessed to have you all !!

Recovery

We met with the Dr who preformed the surgery. It was indeed acute appendicitis. Everything went well, she'll be in recovery for about an hour.

In surgery

They finally took her back into surgery. Should be about an hour till we get to see Mia without an appendix.

This is her selfie!

Surgery - appendix

We just finished talking to a surgeon. .. after hearing about her symptoms for the past days, the problems Mia had this morning and after viewing the CT scans, they determined she needs her appendix removed.
Once they find a time in the OR schedule they will start prepping Mia. He said it should take an hour and it will be laparoscopic. Due to the medication she has be taking, they want to keep her an extra day to give her more antibiotics and keep a close eye on her.

Mia is pretty upset this time. She just wants to come home. She is sad that we've spent all day in the ER. We are trying to keep her calm, reassure her that she will be ok and that we are not leaving her. Once we get more information, well be sure to get it posted.

Thanks to everyone's love and support for our princess Mia.

ER

Well miss Mia has been feeling a little sick and weak over the last few days.  She woke us up this morning saying that she just didn't feel right . She felt very weak and threw up a couple of times , then started to run a fever. We called her oncologist at UW who told us to take Mia to an ER in Rochford.  Once we arrived here the Dr from UW had already spoke with the ER Dr here and given orders for mia. We have been here since a little before noon . She is in a room the drew 3 large tubes of blood , started an IV and giving her IV fluids.  The ER Dr came in and saw mia and checked in over . He felt her stomach and is concerned something may be going on with her appendix so she is drinking some cocktail now to prep her for a CT. The nurse also just drew more blood for a test they need to send out to another lab because they cannot do the test here,  but those results won't be back for uo to 24 hours. They are also monitoring her heart rate and blood pressure as her heart rate has been high like 140's-150 since we arrived . We will update as we find out more ....

Merry Christmas & Happy New Year 2016

We hope everyone had a Merry Christmas and happy new year. .. welcome 2016. Mia had a very good Christmas this year. She got alot of Lego's this year and has already put them all together.

New years eve was relaxing night of card playing, snacking and watching the ball drop. Looking forward to the new year.

We would also like to thank a special angel who's letter & gift truly brightened our holiday spirits.